Tuesday 15 January 2013

Employment Insurance Sickness Benefits need to be extended for those undergoing cancer treatment


Most Canadians believe that when Employment Insurance (EI) deductions are taken from their paycheques, these benefits will be available when they need them. 

However, EI sickness benefits, which are accessed in the event of illness, only last for 15 weeks. For those cancer patients who need chemotherapy, radiation and surgery, or some combination of the three, 15 weeks is usually not long enough for them to fully recover and return to work.

This is exactly what happened to a woman in Chilliwack, BC, who was diagnosed with breast cancer. Her EI sickness benefits were cut off before her treatment ended.   

"15 weeks of EI sickness benefits is not long enough for most Canadians to complete their cancer treatment. The Canadian Cancer Survivor Network calls on the federal government to lengthen EI Sickness benefits so that Canadians undergoing cancer treatment are not forced to suffer financial hardship," said Jackie Manthorne, President and CEO of CCSN.

Gwen O`Mahoney, the MLA for Chilliwack-Hope, noted that the average length of treatment for breast cancer is 38 weeks, but it can last longer. This means patients can be left for up to 18 weeks without any means of income, and provincial welfare programs are not easily assessible as they often require people to use many of their assets before they become eligible.

This is an important issue, one that the Canadian Cancer Survivor Network will be taking action on in the coming weeks. 

Join our campaign to ensure that EI Sickness Benefits truly cover the length of time people with cancer need to recover and return to work by writing jmanthorne@survivornet.ca. We will keep you informed of our activities on this issue.

Mourir dans la dignité - La ministre Hivon rend public le rapport du comité Ménard sur la mise en œuvre juridique des recommandations de la Commission spéciale

QUÉBEC, le 15 janv. 2013 /CNW Telbec/ - La ministre déléguée aux Services sociaux et à la Protection de la jeunesse et ministre responsable du dossier Mourir dans la dignité, madame Véronique Hivon, a rendu public aujourd'hui le rapport du comité d'experts sur la mise en œuvre juridique des recommandations de la Commission spéciale de l'Assemblée nationale sur la question de mourir dans la dignité. Le rapport a été remis officiellement ce matin à la ministre Hivon par MJean-Pierre Ménard, président du comité, et de MMichelle Giroux. Le comité mis sur pied en juin était également composé de MJean-Claude Hébert.
« C'est avec grand intérêt que je reçois ce rapport. Les experts ont travaillé avec beaucoup de sérieux et de rigueur et nous présentent un rapport très étoffé. Leur analyse confirme le bien-fondé de la vision mise de l'avant par la Commission spéciale tout en permettant d'approfondir la réflexion quant à la mise en œuvre sur le plan juridique. Je tiens à les remercier sincèrement pour cette contribution exceptionnelle, qui saura alimenter significativement les travaux en cours visant à donner suite à l'engagement de notre gouvernement de présenter un projet de loi sur la question de mourir dans la dignité », a déclaré la ministre Hivon.
Une analyse exhaustive
Le rapport est divisé en cinq grandes parties : les progrès de la médecine et leurs incidences juridiques, l'évolution de l'encadrement juridique des soins de fin de vie, l'état actuel des pratiques de fin de vie, la révision de l'encadrement juridique pour mettre en œuvre les recommandations de la Commission spéciale et le rôle du Procureur général.
« Animé par le même souci que la Commission spéciale, le comité a choisi de faire porter son analyse non seulement sur l'aide médicale à mourir, mais sur l'ensemble des soins de fin de vie dans une vision intégrée. Après avoir effectué un tour d'horizon exhaustif de l'évolution et de l'état actuel du droit, nous avons étudié en profondeur chacune des recommandations de la Commission spéciale ayant une incidence juridique, et nous en proposons des modalités d'application. Au-delà des aspects techniques de mise en œuvre au cœur du rapport, nos travaux nous ont confirmé que le Québec gagnerait à modifier son cadre législatif afin que les citoyens puissent vivre leur fin de vie conformément à leurs volontés et dans le respect de leur dignité » a expliqué le président du comité, Me Ménard.
La ministre Hivon a saisi l'occasion pour rappeler que les travaux dont elle est responsable au sein du gouvernement portent sur trois grands volets, soit les soins palliatifs, les directives médicales anticipées et l'aide médicale à mourir dans des circonstances exceptionnelles. Outre l'élaboration d'un projet de loi, la démarche vise également à dresser l'état de la situation en matière de soins palliatifs au Québec et à agir pour assurer leur accessibilité.
Le rapport ainsi qu'un résumé sont disponibles sur le site Internet du ministère de la Santé et des Services sociaux : www.msss.gouv.qc.ca/presse

Monday 14 January 2013

The Eve Appeal responds to recent United States Preventive Services Task Force recommendations on ovarian cancer screening


London, England, September 17, 2012 - There have been reports in the media this week of recommendations from the United States Preventive Services Task Force (USPSTF) that screening healthy asymptomatic women for ovarian cancer can do more harm than good. 

To date no ovarian cancer screening strategy has been shown to save lives however the efficacy of ovarian cancer screening is being investigated in the UK Collaborative Trial of Ovarian Cancer Screening (UKCTOCS), co-ordinated by UCL Women's Cancer Department.  The trial aims to answer the question as to whether there should be a national screening programme for ovarian cancer.  The UKCTOCS trial is the largest trial of its kind ever run to investigate ovarian cancer, involving over 200,000 low risk postmenopausal women. This trial reports in 2015 but interim results in 2009 were encouraging.

Prof Usha Menon, Head of the Gynaecology Cancer Research Centre at UCL comments "There are still a few years to go before we have firm evidence as to whether or not screening is able to detect cancer early enough to save lives.   It will also be essential to balance any benefits offered by screening with the downside, as it is recognised that screening can cause anxiety and lead to some unnecessary surgery."

Meanwhile The Eve Appeal has committed £1.65 million to an innovative new research programme - PROMISE 2016 which stands for 'Predicting Risk of Ovarian Malignancy, improving Screening and Early detection'. 
This collaborative and large scale project draws on the expertise at our core research unit at University College London, working shoulder-to-shoulder with leading research scientists at other renowned UK and international institutions. 

The project seeks to improve outcomes by:
  • Identifying at-risk populations and developing a model for predicting a woman's risk of developing ovarian cancer
  • Developing a model for earlier diagnosis of ovarian cancer
Currently there is no ovarian cancer screening programme available to the NHS and the majority of women are diagnosed at a later stage - too late for treatment.  However, if we can identify those most at risk of the disease, and monitor them with improved diagnostic methods, more cancers will be caught earlier and we will save lives.

For more information, visit The Eve Appeal.

Canadians are paying the price for drug shortages, according to Canada’s hospital pharmacists, community pharmacists and physicians

OTTAWA, January 14, 2013 – According to the results of a new survey completed by over 1,070 members of the Canadian Pharmacists Association, Canadian Medical Association, and Canadian Society of Hospital Pharmacists in October 2012, drug shortages clearly remain a problem for Canada’s health system.  The survey confirms that the health and well‐being of patients is being negatively affected, and that physicians and pharmacists are devoting a significant amount of time to dealing with shortages, time that could be better spent improving patient care.

According to the survey, 66% of physicians indicated that drug shortages have become worse since 2010, and 94% of pharmacists reported that they had difficulty sourcing a medication for a patient in the past week.  Sixty‐four percent of physicians indicated that drug shortages had consequences for patients, while 41% of pharmacists reported that their patients’ health had been compromised due to drug shortages.

Physicians and pharmacists both reported that drug shortages have compromised care with up to 20% of patients impacted.  Most frequently noted consequences are:
  • Delayed access to medication
  • Use of a less effective medication or formulation
  • Increased risk of an adverse effect or safety incident
In addition, one out of 5 physicians reported that clinical deterioration had occurred in a patient.
While pharmacists and physicians are trying to source medication for some patients, they have less time to dedicate to other patients:    
  • 67% of physicians reported an increase in time spent on research and consultation to source alternative medication.
  • 47% of physicians reported an increase in length of patient visits due to substitution concerns.  
  • 61% of community and hospital pharmacists had difficulty sourcing a medication in their last shift.
  • 76% of community and hospital pharmacists indicated that drug shortages have a significant impact on their work load with more time spent looking for alternative drugs and communicating with other health professionals about drug shortages.
“Let there be no doubt – these results demonstrate that drug shortages remain a serious problem in the Canadian health care system.  Patients are suffering, and the ability of health providers to deliver quality care for all Canadians is being compromised”, stated Doug Sellinger, President of the Canadian Society of Hospital Pharmacists.  “The efforts of healthcare professionals to lessen the impact on patients have come at the cost of diverting personnel from other areas of care; this diversion is not sustainable.  We need a reliable, resilient system to prevent, report, and manage drug shortages”, he added.

 “Drug shortages impact patient care, patient health, and the efficiency of the overall health care system,” said Dr Anna Reid, President of the Canadian Medical Association. “Patients who can’t get the medicines they need pay a terrible toll.  The commitment of physicians and other health care professionals has helped to lessen the impact on their patients, but it comes at a price:  time better spent with patients is instead being used by physicians to identify alternative drugs and therapies.”

“Our organizations are calling on governments, industry, and other stakeholders to continue working towards developing effective, sustainable solutions to dealing with drug shortages,” stated Paula MacNeil, President of the Canadian Pharmacists Association.  “CPhA has taken a lead on this issue for many years, but only through collaborative efforts will we see meaningful change.”

Additional survey results can be accessed through the survey backgrounder at www.pharmacists.ca/drugshortages; www.cma.ca; or www.cshp.ca.

Friday 11 January 2013

World Cancer Day, February 4, 2013


World Cancer Day 2013 (4 February 2013) will focus on Target 5 of the World Cancer Declaration: Dispel damaging myths and misconceptions about cancer, under the tagline “Cancer - Did you know?”.
World Cancer Day is a chance to raise our collective voices in the name of improving general knowledge around cancer and dismissing misconceptions about the disease. From a global level, we will be focusing our messaging on the four myths below. In addition to being in-line with our global advocacy goals, we believe these overarching myths leave a lot of flexibility for members, partners and supporters to adapt and expand on for their own needs. 
Myth 1: Cancer is just a health issue
Truth: Cancer is not just a health issue. It has wide-reaching social, economic, development, and human rights implications.
Myth 2: Cancer is a disease of the wealthy, elderly and developed countriesTruth: Cancer does not discriminate. It is a global epidemic, affecting all ages, with low- and middle-income countries bearing a disproportionate burden.
Myth 3: Cancer is a death sentenceTruth: Many cancers that were once considered a death sentence can now be cured and for many more people their cancer can now be treated effectively. 
Myth 4: Cancer is my fate
Truth: With the right strategies, more than one in every three cancers can be prevented.

World Cancer Day Events
World Cancer Day Factsheets, available in English, French, Portuguese, Spanish and Arabic.

Thursday 10 January 2013

Ontario Government Seniors’ Strategy Attacks Universality for Seniors’ Health Care; Thin on Improvements to Access


Toronto, ON, January 9, 2013 – The Ontario Health Coalition, representing more than 400 organizations dedicated to protecting public health care, including the Canadian Cancer Survivor Network, warns that the Ontario government’s proposed Seniors’ Strategy threatens the core principle of universal health care for all.
“Universality is a core principle for health care. As more and more services are moved out of hospital it is imperative that Ontarians insist that the Ontario government not abandon this principle in home and community care,” said Natalie Mehra, director of the Ontario Health Coalition.  “The proposal to create a means-tested home care system explicitly threatens privatization rather than upholding the equity principles of the Canada Health Act when it comes to home and community care services for the elderly.”
 “We are strongly opposed to this approach,” added Derrell Dular, managing director of the Older Canadians Network and board member of the Ontario Health Coalition. “We have a means-tested system for funding care. It is called the tax system. Our tax system should be used so that health care is funded in a progressive way according to our ability to pay and corporations should pay their fair share. The burden of care should not put on the sickest individuals when they are elderly or dying. Such an approach is dangerous and violates core values of Ontarians.”
Though there are a number of positive proposals, the Seniors’ Strategy proposals released yesterday by the Minister of Health misses key opportunities to set clear goals to improve access to care, including:
  • The summary and recommendations released to date fail to recognize than many Ontarians already have insufficient home care, or in the worst cases, no access at all. There is no proposal to improve existing access to home care beyond already-announced funding.  Ontarians currently do not have a clear right to access home care services and many patients continue to be offloaded from hospitals without adequate care in place due to funding shortfalls and staffing shortages. In recent months a number of Community Care Access Centres (government agencies responsible for the funding and provision of home care) have reported that they are wait-listing even high needs clients. Care is severely rationed leaving seniors with no option but to pay out-of-pocket or go without. According to the 2010 Provincial Auditor’s report, more than 10,000 Ontarians are on wait lists for home care. The Auditor further found that home care services are inequitable across Ontario and wait lists are inconsistently tracked, a situation that continues today.
  • More than 20,000 Ontarians are waiting for placement in a long-term care home, according to Ministry of Health data, and Health Quality Ontario reports that wait times have quadrupled since 2005. Wait lists numbering 20,000 or more have persisted since the late 1990s. The summary and recommendations release yesterday do not address the long wait lists for Ontarians who have already been assessed as needing long-term care home placement.
  • The report fails to address longstanding problems such as: Ontario’s poorly organized home care which is run through an expensive competitive bidding system rife with duplication and privatization; inadequate care levels in long-term care homes; the shortage of acute care and complex continuing care beds for seniors in hospitals; and, the ongoing cuts to and privatization of outpatient hospital services such as physiotherapy, occupational therapy, speech pathology and chiropody required by the elderly. 
The coalition is producing an analysis of the Ministry’s Seniors’ Strategy recommendations that will be available on our website at www.ontariohealthcoalition.ca
For more information:  Natalie Mehra (office) 416-441-2502 or  Derrell Dular (office) 416-260-3429
Ontario Health Coalition Summary and Analysis of Ontario’s Seniors’ Strategy Recommendations
January 9, 2012
Ontario’s Minister of Health released the summary and recommendations of the report on its Seniors’ Strategy yesterday.
“Living Longer, Living Well” is a report by Dr. Samir K. Sinha, MD, DPhil, FRCPC, Provincial Lead, Ontario’s Seniors Strategy. The full report was not released and is not available on line. The following is a brief summary and analysis of the summary document released yesterday.
Seniors as “Cost-Drivers”
Much of the preamble concerns itself with the cost of seniors to Ontario’s health system. Most of the language of this section offensively relates to seniors as – in the report’s words – “cost-drivers” in the health system. Note: the report’s authors fail to pay commensurate recognition to the fact that seniors have funded this system for their entire lives and as such as key investors in our health system, if one is to follow this odious line of thinking wherein demographic groups are defined in terms of their relative costs. The summary and recommendations state that left unaddressed, the increase in the elderly population “could bankrupt our province”. There is not one shred of evidence in the summary and recommendations document released that supports this contention. 
Some of the media reports have followed suit, without considering any actual facts. Some media reports today refer to seniors’ health costs as “skyrocketing” or other such hyperbole. In fact, home care funding has actually declined as a proportion of provincial health spending, and on a per-client basis. Health care spending in Ontario is less as a share of the provincial budget than it was a decade ago and we are near the bottom of the country in health care spending.
Means-tested Home Care
The preamble contains lip service to embracing “progressive” funding and moving forward based on the needs and values of Ontarians. However, the key recommendation regarding funding is not progressive. The report calls for means-testing and some sort of user fees or deductible to pay for home care. The Minister, in her comments yesterday, noted that the provincial government has done this for drugs for seniors and wants to extend it to home care. The report also recommends further means-tested and user fees for drug benefits for seniors – beyond the user fees for those with incomes of greater than $100,000 as adopted in the budget – something several seniors’ groups warned about last spring.
The proposal for a means-tested home and community care system is a dangerous proposal and we are strongly opposed to it. The Canada Health Act calls for health care to be provided on a universal basis: on equitable terms and conditions regardless of income. As more and more hospital services are moved out of hospitals into home and community care, progressive organizations all across Canada have called for the extension of the principles of the Canada Health Act to cover home and community care. The Minister of Health is instead proposing to privatize the payment for home and community care.
The burden of care should not be put on the sickest when they are elderly and dying.  The proposal to adopt a means-based home care system is an abrogation of the promise of the Canada Health Act, and core principles held by Liberal governments for two generations (and the NDP, and many citizens who vote Conservative also).  The introduction of this approach into the Ontario Drug Benefit Program was a dangerous precedent and in a very short time we are able to see exactly why it is such a slippery slope.  It is important that our members and supporters tell the government that we strongly oppose means-tested health care for seniors and the abandonment of universality.
The Principles
 Access, Equity, Choice, Value and Quality are listed as the principles in the summary and recommendations. In theory this is an innocuous list, though far less than the Canada Health Act’s principles. However, these principles are not defined in the usual way and much of the language is vague and without concrete proposals.
Much of the language of this section pertains to moving patients out of hospitals. There is no mention of patients’ rights to access hospital care, to be protected from user fees or coercive tactics to force hospital discharge, or to be given proper and full information on their choices regarding living in long-term care homes if they have assessed need for this level of care.
Moreover, there is no concrete recommendation to establish a positive right to access any range of home or long-term care. No recognition of extremely long wait lists.
Equity does not mention income as a factor (though equitable access to care without user fees is a core tenet of the Canada Health Act). And it does not mention rural/urban issues.
There is nothing here to protect seniors’ access to publicly funded health care and support services. Choice is not only choice to live at higher risk with less service, but also choice not to be discharged out of hospital without adequate care or refused information on long-term care placement.
Poverty and Income Supports
The summary notes that Ontario has done much to reduce poverty levels in older adults to below national levels. It does not recognize growing poverty among seniors in Ontario – a rate of increase that is almost double that of other provinces – nor the increase in poverty amongst older women in particular.
A positive recommendation is that the province should support efforts for retirement and age-related benefits (old age security) for low and moderate income seniors. However, there are no concrete measures attached.
A weird recommendation is that among other active and healthy living proposals, the  seniors’ secretariat should promote meaningful employment for elderly.
Other positive recommendations  include
  • Increased awareness of services to help the elderly stay healthy and at home.
  • Improved access to primary care, improved communication, team-based approach, house calls.
  • Increase funding to home and community care by 4% this year and next.
  • Increased respite, convalescent care.
  • Nurse-led outreach teams for long-term care. (This is not clear but sounds potentially positive.)
  • A provincial working group of geriatricians, care of the elderly family physicians and specialist nurses, allied health professionals, and others to help develop a common provincial vision for the delivery of geriatric services and a prioritization plan to guide local staffing and funding of care models as resources become available.  Note: though the provincial working group is positive and can work to make concrete recommendations to address shortages, etc., there are no concrete recommendations to address these in this report.
  • Enhancing the range of palliative care settings available in their regions, including within a patient’s home, hospice, and institutional care settings as well.
  • Clinical practice guidelines to reduce drug interactions.
  • Full review of MedsCheck program to evaluate its efficacy.
  • Promote awareness of respite and unpaid caregiver support programs.
  • Awareness initiatives for elder abuse, though nothing concrete to support them.
Other poor recommendations/privatization
In addition to the privatization of payment for home and community care recommended, there are other key privatization threats included in the recommendations.
  • More means-testing (private payment) for the Ontario Drug Benefit program. The report recommends the Ministry complete its move away from the ODB program for seniors to a full income-tested system rather than age-based system. Note: this is privatization of payment, but it is also not clear that it isn’t just a cut. Ontario already has a means-tested drug benefit plan (Trillium) so it is not clear what is meant here.
  • There is a recommendation to improve access to clinic-based physiotherapy. Thus, does the report seem to support the continued closure of out-patient physiotherapy in our local hospitals? There is no clarification as to whether these clinics would be privately owned and operated or public, for-profit or non-profit. There is no clarification as to whether this would be privately-paid physiotherapy or publicly-funded.
  • There is a recommendation that long-term care homes be a home and community care hub. This is undefined, however, it risks further for-profit privatization of home and community care and we oppose any such proposal. (The majority of Ontario’s long-term care homes are now private and for-profit.)
Other undefined proposals
  • Community Paramedicine – not defined.
  • Hospital at Home model – not defined.
  • Senior Friendly Hospitals approach – not defined, sounds positive.
  • Adoption of care transitions and standards as part of the Avoidable Hospitalization Advisory Panel’s recommendations – in the report titled Enhancing the Continuum of Care. Which recommendations?
  • Undefined capacity planning to move people from long-term care homes to assisted living, home care or supportive housing.  It is not clear what this means or how it is intended to be accomplished. Potential bad-case scenario: long-term care residents to be subjected to the same system of reassessment and care rationing that home-care clients are now subjected to?
  • The Ministry of Health and Long-Term Care should support its LHINs to leverage the partnerships, momentum, and successes of their Behavioural Supports Ontario (BSO) Initiative to help define what core community geriatric mental health and addictions services need to be funded and delivered. Additionally, a standard approach to assessment, referral, and service delivery models needs to be developed and implemented within and across LHINs. Note: this proposal seems to adopt the dangerous “core service” approach, often a euphemism for cuts to needed health care services. It is not clear what is intended here.
  • Nothing concrete on aboriginal seniors’ care – a call for a process to consult on an aboriginal seniors’ strategy.
  • A call for improved transportation – nothing concrete.
  • Lip service to supports to modify homes to age in place.
  • Alternative Funding – not defined – for geriatricians
  • Strengthen PSW registry – not clear what this means.
  • Health, social, and community services providers streamline their assessment and referral processes in unspecified ways – not clear what this means.
What is Missing
  • The summary and recommendations released to date fail to recognize than many Ontarians already have insufficient home care, or in the worst cases, no access at all. There is no proposal to improve existing access to home care beyond already-announced funding.  Ontarians currently do not have a clear right to access home care services and many patients continue to be offloaded from hospitals without adequate care in place due to funding shortfalls and staffing shortages. In recent months a number of Community Care Access Centres (government agencies responsible for the funding and provision of home care) have reported that they are wait-listing even high needs clients. Care is severely rationed leaving seniors with no option but to pay out-of-pocket or go without. According to the 2010 Provincial Auditor’s report, more than 10,000 Ontarians are on wait lists for home care. The Auditor further found that home care services are inequitable across Ontario and wait lists are inconsistently tracked, a situation that continues today.
  • More than 20,000 Ontarians are waiting for placement in a long-term care home, according to Ministry of Health data, and Health Quality Ontario reports that wait times have quadrupled since 2005. Wait lists numbering 20,000 or more have persisted since the late 1990s. The summary and recommendations release yesterday do not address the long wait lists for Ontarians who have already been assessed as needing long-term care home placement.
  • The report fails to address longstanding problems such as: Ontario’s poorly organized home care which is run through an expensive competitive bidding system rife with duplication and privatization; inadequate care levels in long-term care homes; the shortage of acute care and complex continuing care beds for seniors in hospitals; and, the ongoing cuts to and privatization of outpatient hospital services such as physiotherapy, occupational therapy, speech pathology and chiropody required by the elderly. 
Ontario Health Coalition
15 Gervais Drive, Suite 305
Toronto, Ontario M3C 1Y8

CCSN calls for timely access to targeted bone therapies for patients with advanced prostate cancer in British Columbia


The Canadian Cancer Survivor Network has learned that BC Pharmacare has listed the newest bone-targeting agent on its formulary for men with advanced prostate cancer that has spread to their bones, who are considered palliative. While this is good news for these patients and a positive step forward, other men with prostate cancer that has spread to their bones, who are not palliative, are still being denied access to bone-targeted treatments at the appropriate time in therapy.
Men whose cancer has spread, or metastasised, to their bones are at risk of developing serious, debilitating complications such as fractures, spinal cord compression or the need for surgery or radiation. These complications can cause mobility issues, disability, hospitalization and even death.
To reduce the risk of developing bone complications, patients with advanced prostate cancer need to receive a bone-modifying agent at the earliest confirmation of metastases. However, patients in BC must wait until they are considered palliative, or have six months to live, before BC Pharmacare will pay for treatment to prevent complications.
We believe that BC patients deserve the same level of evidence-based care that patients in other provinces receive.
BC Pharmacare must allow patients access to the most appropriate bone-targeting treatment at the earliest confirmation that the cancer has spread to the bones, when the agent can be the most helpful, to prevent debilitating complications.
If you would like to assist us in our efforts to help men with advanced prostate cancer receive the same evidence-based care as patients in other provinces, please contact me at Jmanthorne@survivornet.ca.
Together we can make a difference.