Tuesday, 30 September 2014

Canadian Cancer Survivor Network launches A Family Affair: Prostate Cancer Family and Caregiver Portal

Online resource recognizes unique family and caregiver experience of prostate cancer
Toronto, ON – September 30, 2014 – For those dealing with prostate cancer, the journey from diagnosis to treatment and management of the disease is rarely a road travelled alone. Spouses, partners, children, extended family, friends and even colleagues may share in the burden of this life-changing disease.
The Canadian Cancer Survivor Network (CCSN) recognizes the heavy burden a diagnosis of prostate cancer places not only on the men who are diagnosed with it, but on their families and extended support networks. In response, CCSN is proud to announce the launch of A Family Affair: Prostate Cancer Family and Caregiver Portal, an online portal recognizing and addressing the experience of prostate cancer, whether in its early or more advanced stages, as a family affairhttp://survivornet.ca/en/cancer_basics/prostate_cancer_family_affair_portal.
"It is critically important to address the information needs and concerns of a man’s support network,” says Jackie Manthorne, President and CEO of the Canadian Cancer Survivor Network. "Each man will have their own experience of prostate cancer. Aside from purely medical considerations, the journey includes many practical decisions and adjustments. Each of these changes has the potential to impact those closest to him. Providing families and other caregivers a place to find reliable information they can relate to, and a place to connect, can help alleviate some of the anxiety associated with a prostate cancer diagnosis.”
About the Portal
The Prostate Cancer Family and Caregiver Portal provides a trusted and accurate source of prostate cancer information – and connection. Like the spokes of a wheel, sections on the portal centralize information on the diagnosis and treatment of prostate cancer, provide information and resources on financial planning and address the issues that wives and partners face, but may be embarrassed or reluctant to articulate.
“Being diagnosed with prostate cancer was an overwhelming experience for my family and me,” says Derek Lawrence. “At first, we weren’t sure where to turn for information and support, and felt a bit lost in the shuffle. Thanks to the efforts of the Canadian Cancer Survivor Network, men like me, and our families, now have access to important resources. The new portal provides relevant and easy-to-interpret information to help support us as we learn to cope with our disease and continue fighting. It also allows us to connect with others going through the same difficulties; to know we aren’t alone.”
The portal also includes:
·         Information for wives, partners and adult children as caregivers
·         Details on caregiving for advanced prostate cancer
·         Financial information and resources
·         Prostate cancer organizations and news
Social media platforms including a prostate cancer Twitter account, @prostatepost, a Facebook pagehttps://www.facebook.com/prostatepost and a community blog http://prostatepost.blogspot.ca/ have also been set up to encourage sharing and learning through conversation, storytelling and information transfer.
The portal was funded through an unrestricted educational grant from Astellas Pharma Canada, Inc. and Janssen Inc.
About Prostate Cancer in Canada
Prostate cancer is the most common cancer to affect Canadian men.[i]
It is estimated that in 2014:
  • 23,600 men will be diagnosed with prostate cancer.
  • 4,000 men will die from prostate cancer.
  • On average, 65 Canadian men will be diagnosed with prostate cancer every day.
  • On average, 11 Canadian men will die from prostate cancer every day. [ii]
The chance of getting prostate cancer rises quickly after a man reaches age 50, and almost two out of three prostate cancers are found in men over 65.[iii]  Age is the most important risk factor for prostate cancer.[iv]
About Canadian Cancer Survivor Network (CCSN)
CCSN is an organization committed to developing public policy on cancer issues and increasing advocacy for optimal cancer care and follow-up. CCSN works to connect patients, survivors and other stakeholder groups with decision makers and the wider community to engage in discussion and to act on evidence-based best practices to alleviate the medical, emotional, financial and social costs of cancer and encourage research on ways to overcome barriers to optimal cancer care and follow-up for survivors in Canada.
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For more information or to schedule an interview, please contact:
Allison Goodman
energi PR
416-425-9143 x18
allison.goodman@energipr.com                                                              
Jackie Manthorne                                                                                           
Canadian Cancer Survivor Network
613-898-1871
jmanthorne@survivornet.ca
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Friday, 12 September 2014

New Canadian Cancer Survivor Network Chair wants patients to have more say

September 12, 2014, Ottawa, Ontario - Former breast cancer patient Elaine Dean was elected Chair of the Board of Directors of the Canadian Cancer Survivor Network (CCSN) at their recent Annual General Meeting.

Says CCSN President and CEO, Jackie Manthorne: “We are pleased to welcome Elaine as our incoming Board Chair. Her appointment will  help CCSN continue to grow as an organization to achieve our mission, which is to empower collaborative action by cancer patients, families and communities to identify and work to remove barriers to optimal patient care.”

Elaine has been a volunteer member of CCSN Board of Directors since shortly after its incorporation in November 2011. Since 1990, she has participated as a trained consumer reviewer in peer review panels here in Canada as well as in the U.S. and overseas. Elaine has also served as spokesperson on breast cancer issues for CCSN, a role she will continue as Chair.

Says Elaine: “What is unique about CCSN is its ability to represent the voice of Canadians as cancer patients and cancer survivors, with Canada’s healthcare professionals, the public and with policy makers. As an organization, we are deeply committed to sharing the latest information available to Canadians about cancer. What we would like to see, is more active engagement of patients and former patients within Canada’s healthcare community.”

More than 2 in 5 of Canadians experience a cancer diagnosis over the course of their lifetime. While improvements continue to be made in the early diagnosis and treatment of the different forms of cancer, with research ongoing to find cures, more needs to be done.

Elaine’s election by CCSN members is an indication of the growing opinion within the organization that breast cancer patient and survivor concerns need more universal understanding and attention, and a seat at the table.

Breast cancer is one of the most prevalent cancers both facing and feared by women in Canada today. Treatment is still not as effective or as coordinated as it should be, and unnecessary errors continue to be made in the diagnosis of breast cancer. Awareness continues to be a challenge, and more attention needs to be paid to the ongoing financial, emotional, family and workplace needs of Canadians and their families, who are experiencing or have experienced this disease.

To learn more about CCSN, please visit www.survivornet.ca or get engaged through social media:

Twitter: @survivornetca
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