Tuesday, 23 October 2012

Managing chemo's side-effects

Check out the article in yesterday's Vancouver Sun entitled "Managing chemo's side-effects," which includes a quote from me.

The article is about febrile neutropenia (FN), which is one of the most common side-effects of chemo. FN is the combination of a low white blood cell count 
and fever of 38.3 degrees or higher. 

Left untreated, it can be life-threatening. 

Tuesday, 9 October 2012

Mayor officially opens office for Canadian Cancer Survivor Network

Ottawa – Mayor Jim Watson cut the ceremonial ribbon to officially open the office of the Canadian Cancer Survivor Network Wednesday October 3, 2012, surrounded by cancer survivors, families, community organization representatives and funders.

The Mayor presented a framed declaration to commemorate the occasion to Jackie Manthorne, President and CEO. He spoke of the dedication of Board, staff, and volunteers and acknowledged the valuable role of the Canadian Cancer Survivor Network in serving as a voice for cancer patients, survivors, their families, and other community stakeholders.

President and CEO Jackie Manthorne thanked the Mayor and talked about the collaboration and support of the founding Board of Directors: Garth Bulmer, Vanessa Compton, Mike Fletcher, Mona Forrest, Ross Hammond, and Albert Klein.

Reverend Doctor Dana Fisher blessed the new office and read an Irish poem related to all things to be thankful for.

Takihiro Hirasawa, President of Eisai Limited, spoke about commonalities between Eisai starting their Canadian office about a year ago when the Canadian Cancer Survivor Network was in development, and he noted the CCSN web site opened on the same date as his birthday. He wished the organization much success.

Other supporters present included Trina Fraser of Brazeau Seller, Tony Di Iorio of Bradda Printing Services, Elise Giasson  of Merck, and Mike Murphy of Canada’s Research-Based Pharmaceutical Companies (Rx&D).

Over seventy attendees celebrated at the Open House.

About the Canadian Cancer Survivor Network

The Canadian Cancer Survivor Network (CCSN) is a national network of patients, families, survivors, friends, community partners and sponsors. Its mission is to work together by taking action to promote the very best standard of care, support, follow up and quality of life for cancer patients and survivors. It aims to educate the public and policy makers about cancer survivorship and encourage research on ways to alleviate barriers to optimal cancer care in Canada.
Contact: Canadian Cancer Survivor Network – Media Relations, Mona Forrest, 613-898-1871

Tuesday, 2 October 2012

​Canadian Cancer Survivor Network announces website launch just in time for breast cancer awareness month

Website features video testimonials and information about chemo-induced nausea and vomiting

OTTAWA, Ontario – October 3, 2012 – Just in time for Breast Cancer Awareness Month, the Canadian Cancer Survivor Network (CCSN) is pleased to announce the launch of their website (www.survivornet.ca) and their new Ottawa office at an open house that will be attended by Ottawa Mayor Jim Watson. Among other subjects, the website tackles an important issue that they believe is not being appropriately addressed across Canada: chemotherapy-induced nausea and vomiting (CINV).

Part of CCSN's vision is to ensure cancer patients and survivors have access to current knowledge about treatment, options and outcomes. Concerned that there is a lack of information about managing CINV, CCSN is working hard to close this knowledge gap in order to help end disparities in patient care and treatment.

"Nausea and vomiting is the most feared side effect of chemotherapy. When uncontrolled, it can have a severe impact on patients, including loss of appetite and weight loss, even broken bones and re-opening of surgical wounds in extreme cases,” says Dr. Kylea Potvin, Medical Oncologist at the London Regional Cancer Program. “As a result, some people even decide to stop treatment that can prolong their survival."

Approximately 70 to 80 per cent of cancer patients experience CINV[1]

Although chemotherapy regimens have been very useful to treat cancer it can come with debilitating side effects such as nausea and vomiting. This is an unfortunate but common side effect of chemotherapy regimens.

“CINV can be debilitating but can also be prevented. Patients should speak to their doctor about treatment options before they start chemotherapy,” says Jackie Manthorne, President and CEO of CCSN. “Cancer is already a difficult journey and patients should be able to focus on healing while spending quality time with their loved ones. By preventing CINV, there is one less thing to worry about”.

There is hope for Canadian patients to live a better life with cancer

CCSN believes that with access to the right treatment options, there is hope for Canadian patients to live a better life with cancer. “We reached out to those in our network who has undergone, or who are undergoing, chemotherapy and who have experienced nausea and vomiting to share their stories with us. We chose three people who volunteered to participate in video testimonials to explain how access to treatment helped them regain control of their life, and we have posted them on our website,” adds Manthorne.

“Fifteen years ago, I was diagnosed with breast cancer and suffered from severe nausea and vomiting during my treatment. I felt like I had completely lost control over my body,” explains Catherine Mooney, a cancer survivor. “Last year, I was diagnosed again with breast cancer. This time, my doctor provided me with an option to help control the nausea and vomiting. This enabled me to spend more time with my friends and family and it really helped me to be more positive about my treatment because I didn’t feel so sick all the time.”
CCSN’s new video testimonials are from:
To learn more about CINV treatment options, speak to your doctor, or visit be www.survivornet.ca/en/cancer_issues/chemo_induced_nausea_and_vomiting for more information.

About the Canadian Cancer Survivor Network (CCSN)

The Canadian Cancer Survivor Network was created by a group of Canadians concerned about cancer. CCSN's mission is to empower collaborative action by cancer patients, families and communities to identify and work to remove barriers to optimal patient care, and to ensure that cancer survivors have access to education and action opportunities to have their voices heard in planning and implementing an optimal health care system. CCSN is committed to educate the public and policy makers about the financial, emotional and health costs of cancer and offer considered, positive ideas and recommendations to alleviate their effects. To learn more, visit www.survivornet.ca.
The CCSN acknowledges Merck Canada for its support of the launch of the CCSN website and its campaign to raise awareness about CINV.
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Kristen King
Dominique Quirion / Roch Landriault
514-843-2302 / 514-843-2365
dquirion@national.ca / rlandriault@national.ca

[1] NCCN Clinical Practice Guidelines in Oncology; Antiemesis, Version 2.2010.