Showing posts with label website portal. Show all posts
Showing posts with label website portal. Show all posts

Wednesday, 16 December 2015

New cervical cancer portal provides essential information for Canadian women

Ottawa, December 10, 2015: The Canadian Cancer Survivor Network is pleased to announce the launch of its newest website portal on cervical cancer.

Approximately 1,050 Canadian women are diagnosed with cervical cancer annually, and this number increases every year.  For those dealing with this type of cancer, the journey from diagnosis to treatment and management of the disease is rarely a road travelled alone. Spouses, partners, children, extended family, friends and even colleagues may share in the burden of this life-changing disease.
The Canadian Cancer Survivor Network (CCSN) recognizes the heavy burden a diagnosis of cervical cancer places not only on women who are diagnosed with it, but on their families and extended support networks. In response, CCSN has created an online portal recognizing and addressing the experience of cervical cancer, whether in its early or more advanced stages.

"It is critically important to address the information needs and concerns of women diagnosed with cervical cancer and their families,” said Jackie Manthorne, President and CEO of the Canadian Cancer Survivor Network. "Each woman will have her own experience of cervical cancer. Aside from purely medical considerations, the journey includes many practical decisions and adjustments. Each of these changes has the potential to impact those closest to them. Providing families and other caregivers a place to find reliable information they can relate to, and a place to connect, can help alleviate some of the anxiety associated with a cervical cancer diagnosis.”

About the Portal

The Cervical Cancer Portal provides a trusted and accurate source of information and resources. Like the spokes of a wheel, sections on the portal centralize information on the diagnosis and treatment of cervical cancer, provide information and resources on financial planning and address the issues that caregivers face. It also provides detailed information that the HPV test for cervical cancer is more accurate than the Pap test in that it detects cancer risk earlier and prevents more deaths than the Pap test.

The Cervical Cancer Portal includes the following sections:
  • Cervical Cancer Screening: the HPV and Pap test
  • HPV and cervical cancer risk factors
  • Diagnosis of cervical cancer
  • Cervical cancer treatment
  • Living well with cervical cancer
  • Caregiving and cervical cancer 
  • Financial information and resources
Social media platforms including a cervical cancer Twitter account, @cervicalcanca, as well as the Canadian Cancer Survivor Network’s general Twitter account, @survivornetca.

About the Canadian Cancer Survivor Network

The Canadian Cancer Survivor Network (CCSN) works to connect patients, survivors and other stakeholder groups with decision makers and the wider community to engage in discussion and to act on evidence-based best practices to alleviate the medical, emotional, financial and social costs of cancer. CCSN encourages and conducts research on ways to overcome barriers to optimal cancer care and follow-up for survivors in Canada.

This website portal was made possible by the generous support of Qaigen.

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For additional information or interviews:
Jackie Manthorne, President & CEO
Canadian Cancer Survivor Network
1-613-898-1871
jmanthorne@survivornet.ca

Tuesday, 30 September 2014

Canadian Cancer Survivor Network launches A Family Affair: Prostate Cancer Family and Caregiver Portal

Online resource recognizes unique family and caregiver experience of prostate cancer
Toronto, ON – September 30, 2014 – For those dealing with prostate cancer, the journey from diagnosis to treatment and management of the disease is rarely a road travelled alone. Spouses, partners, children, extended family, friends and even colleagues may share in the burden of this life-changing disease.
The Canadian Cancer Survivor Network (CCSN) recognizes the heavy burden a diagnosis of prostate cancer places not only on the men who are diagnosed with it, but on their families and extended support networks. In response, CCSN is proud to announce the launch of A Family Affair: Prostate Cancer Family and Caregiver Portal, an online portal recognizing and addressing the experience of prostate cancer, whether in its early or more advanced stages, as a family affairhttp://survivornet.ca/en/cancer_basics/prostate_cancer_family_affair_portal.
"It is critically important to address the information needs and concerns of a man’s support network,” says Jackie Manthorne, President and CEO of the Canadian Cancer Survivor Network. "Each man will have their own experience of prostate cancer. Aside from purely medical considerations, the journey includes many practical decisions and adjustments. Each of these changes has the potential to impact those closest to him. Providing families and other caregivers a place to find reliable information they can relate to, and a place to connect, can help alleviate some of the anxiety associated with a prostate cancer diagnosis.”
About the Portal
The Prostate Cancer Family and Caregiver Portal provides a trusted and accurate source of prostate cancer information – and connection. Like the spokes of a wheel, sections on the portal centralize information on the diagnosis and treatment of prostate cancer, provide information and resources on financial planning and address the issues that wives and partners face, but may be embarrassed or reluctant to articulate.
“Being diagnosed with prostate cancer was an overwhelming experience for my family and me,” says Derek Lawrence. “At first, we weren’t sure where to turn for information and support, and felt a bit lost in the shuffle. Thanks to the efforts of the Canadian Cancer Survivor Network, men like me, and our families, now have access to important resources. The new portal provides relevant and easy-to-interpret information to help support us as we learn to cope with our disease and continue fighting. It also allows us to connect with others going through the same difficulties; to know we aren’t alone.”
The portal also includes:
·         Information for wives, partners and adult children as caregivers
·         Details on caregiving for advanced prostate cancer
·         Financial information and resources
·         Prostate cancer organizations and news
Social media platforms including a prostate cancer Twitter account, @prostatepost, a Facebook pagehttps://www.facebook.com/prostatepost and a community blog http://prostatepost.blogspot.ca/ have also been set up to encourage sharing and learning through conversation, storytelling and information transfer.
The portal was funded through an unrestricted educational grant from Astellas Pharma Canada, Inc. and Janssen Inc.
About Prostate Cancer in Canada
Prostate cancer is the most common cancer to affect Canadian men.[i]
It is estimated that in 2014:
  • 23,600 men will be diagnosed with prostate cancer.
  • 4,000 men will die from prostate cancer.
  • On average, 65 Canadian men will be diagnosed with prostate cancer every day.
  • On average, 11 Canadian men will die from prostate cancer every day. [ii]
The chance of getting prostate cancer rises quickly after a man reaches age 50, and almost two out of three prostate cancers are found in men over 65.[iii]  Age is the most important risk factor for prostate cancer.[iv]
About Canadian Cancer Survivor Network (CCSN)
CCSN is an organization committed to developing public policy on cancer issues and increasing advocacy for optimal cancer care and follow-up. CCSN works to connect patients, survivors and other stakeholder groups with decision makers and the wider community to engage in discussion and to act on evidence-based best practices to alleviate the medical, emotional, financial and social costs of cancer and encourage research on ways to overcome barriers to optimal cancer care and follow-up for survivors in Canada.
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For more information or to schedule an interview, please contact:
Allison Goodman
energi PR
416-425-9143 x18
allison.goodman@energipr.com                                                              
Jackie Manthorne                                                                                           
Canadian Cancer Survivor Network
613-898-1871
jmanthorne@survivornet.ca